四胞胎患脑瘫，负债累累，妈妈每天辗转3小时带孩子进城看病

2017-01-06 08:56

标签：四胞胎脑瘫康复负债

这是来自安徽阜南的四胞胎，姝雅、梓琪、士煜、士琛，今年已经3岁。因为早产，全部患上脑瘫。家人曾带着他们辗转杭州、上海、合肥求医，现在回到阜阳农村家中。图为四个孩子已经渐渐长大。

四胞胎患脑瘫，负债累累，妈妈每天辗转3小时带孩子进城看病

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			"prevue": "这是来自安徽阜南的四胞胎，姝雅、梓琪、士煜、士琛，今年已经3岁。因为早产，全部患上脑瘫。家人曾带着他们辗转杭州、上海、合肥求医，现在回到阜阳农村家中。图为四个孩子已经渐渐长大。",
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		   	"note": "这是来自安徽阜南的四胞胎，姝雅、梓琪、士煜、士琛，今年已经3岁。因为早产，全部患上脑瘫。家人曾带着他们辗转杭州、上海、合肥求医，现在回到阜阳农村家中。图为四个孩子已经渐渐长大。",
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		   	"note": "每天下午，孩子妈妈和奶奶带着四个孩子辗转3个多小时进城做康复训练。0-3岁是孩子康复治疗的最佳时机，未来他们希望孩子能够生活自理，能够和别的孩子一样上学。图为妈妈和奶奶带着他们乘坐公交车进城。",
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		   	"note": "自那以后，她的生活发生了很大的变化。虽然人们说多子多福，但在朱成珍看来，她怕自己连生产这一关都扛不过去。图为孩子感冒了，一个传一个，全部要喂药",
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		   	"note": "由于早产，四个孩子的体重特别轻，分别是980克、1050克、1000克和850克，大女儿只有35厘米。姐弟四人一离开刚妈妈的肚子，就被送进了新生儿救护中心的保温箱。图为孩子们午睡的时候，朱成珍也爬上床准备休息一会，每当想起当年怀这四个孩子的情形，她依然心有余悸",
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		   	"note": "就在朱成珍全家期待着孩子早点康复出院回家时，又一个坏消息传来。四个孩子因为早产，不同程度患上脑损伤。“听到这个消息，我和常胜一下子就懵了。”朱成珍说，“起初我们还不相信，后来医院给孩子做磁共振检查，发现四个孩子都是不同成都脑损伤，就是脑瘫。”图为在经过长时间的康复训练，老大已经是几个孩子中状况最好的一个，不过每次康复训练，她都很害怕",
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		   	"note": "“抓紧治疗吧，最好的结果是其中两个孩子能够生活自理。这还是说两个情况好一点的孩子。另外两个孩子怎么样还很难说。”闻听医生这么安慰他们，朱成珍和丈夫当时就傻了，他们曾经看过脑瘫孩子康复以及生活状况的新闻，但要知道人家是一个孩子，自己则是四个啊。图为两个孩子在接受仪器治疗。",
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		   	"note": "越早越有希望，这是医生给四个孩子下的建议。而对一个来自于阜阳农村，仅靠几亩田地聊以为生的家庭来说，如何坚持？何况，为了给四个孩子看病，已经花光家里的积蓄，还在外面借了很多钱。图为老三哭着要妈妈，在四个孩子中，老三身体最弱，也最喜欢哭，一年多时间都没有变。",
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		   	"note": "“最初的一个月都是给孩子治病，老三士煜身体状况最差，他从出生到现在花费的钱比老大老二和老四三个孩子的总和还要多。”朱成珍说，“在上海康复治疗费用，一周一万多，如果不是医院给我们减免了很多，还有社会人士的捐赠，我们可能早就垮了。”图为现在孩子每天下午在城里康复医院要做两个多小时的康复训练。",
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		   	"note": "不久前，四个孩子回到阜南老家，但康复训练一直都在持续。每天上午，妈妈朱成珍和奶奶用三轮车将孩子送到幼儿园，午饭后就去接回来。",
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		   	"note": "然后婆媳俩带着四个孩子乘坐公交车进城，来回将近3个小时到阜阳的一家康复医院进行康复治疗，回到家中已经是晚上7点多。图为四个孩子在镇里的一所幼儿园开始上学，朱成珍希望孩子可以像正常孩子一样接受教育。",
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		{
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		   	"note": "“我最大的希望是孩子今后能够维持自己的生活，和正常孩子一样去上学。”让朱成珍全家欣慰的是，几个孩子得到很多好心人的关注。图为老三站在凳子上在橱子里拿苹果吃。",
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		{
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		   	"note": "尽管现在阜阳的康复治疗都是免费的，但由于前期给孩子治病花费太多，四个孩子一个月的生活费是个不小的开支，面对负债累累的家庭，看着孩子朱成珍常常愁容满面。“现在唯一的经济来源就是孩子父亲打工。”朱成珍说,“不过，无论怎么样，我们都会坚持，将孩子养大。”图为孩子们在吃晚餐，晚餐只有两个素菜，有些简单。如果你想帮助脑瘫四胞胎，请关注“乙图”微信公众号（yi_photos），并留言。",
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		   	"note": "2013年4月朱成珍怀孕，知道自己怀了四胞胎，吓哭了。朱成珍说，最早觉得自己肚子比正常怀孕女人大很多，怀孕四个多月时，到医院被查出怀上了四胞胎。图为几个孩子在合肥康复医院康复。四个孩子虽然是四胞胎，但相互之间并不相像",
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		{
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		   	"note": "尽管朱成珍全家小心翼翼，但意外还是发生了，当朱成珍怀孕至6个半月时，孩子出现了早产征兆，被立即送往医院，很快四个孩子来到人间，两男两女，两个女孩是姐姐，两个男孩是弟弟。图为吃奶都是同时吃，奶瓶也是四个，不然孩子们就会哭闹",
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		{
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		   	"note": "四个孩子诞生，全家自然很高兴，然而这种好心情并没有持续多久。好不容盼到四个孩子陆续从保温箱里出来，两个星期后其中两个孩子开始咳嗽。在阜阳当地医院，两个孩子先是被检查出支气管炎，后来又慢慢演变成肺炎。更要命的是，伴随着持续的治疗，所有的积蓄都用光了。直到此刻，他们才感受到四个孩子给他们带来的巨大的压力。图为妈妈不在，奶奶一个人带着三个孩子",
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		{
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		   	"note": "小推车都是四个孩子一起坐着，哪一个没坐上都会哭",
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		{
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		   	"note": "唯一的好消息则是，孩子刚刚出生不久就被及时诊断出脑瘫，0—3岁是脑瘫孩子康复的最佳时间，这也成了朱成珍全家唯一的希望。图为老二在接受手臂按摩训练。",
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		{
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		   	"note": "康复治疗刻不容缓。在社会爱心人士的帮助下，2014年5月，朱成珍和丈夫带着四胞胎到上海进行诊治和康复训练。图为孩子在结束手部训练后，自己走出训练房。",
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		{
			"id" : "24346176890369",
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		   	"note": "不过，康复治疗还是给朱成珍带来很多惊喜，在上海几个月的康复，四个孩子都有不同程度好转。2015年3月，朱成珍带着孩子来到合肥一家康复医院，经过一段时间的康复训练，孩子的症状也在持续好转，这让朱成珍欣喜万分。“如果没有这些训练，孩子们将有可能因脑瘫成为患有肢体障碍、语言障碍的残疾孩子了。”图为老大已经可以奔跑。",
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		{
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		   	"note": "幼儿园里午睡的四胞胎。",
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		{
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		   	"note": "康复训练让朱成珍看到了希望。目前老大姝雅和老三士煜行走都没有任何问题，但还需要进行手和脑的感觉知觉以及协调能力训练。老二梓琪腿依然有的问题，不过已经可以行走了，老四士琛肌力很差，训练还要坚持。图为从城里回来后，四个孩子在院子里玩耍。",
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		   	"osize": {"w":900,"h":599},
		  	"title": "",
		   	"note": "前期孩子治疗和康复花去了80多万，中国脑瘫基金会和上海一家医院为孩子免去8个月将近50万的康复费用，去年腾讯公益也给孩子极大的帮助，募集了20万元的医疗费和生活补助，但很快就用完了。图为，天黑了，几个孩子在门前吃东西，此时妈妈在做晚餐。",
		   	"newsurl": "#"
		}
		
		]
		}

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